HHS wants to give you your health data, do you want it
Encouraging patients to access and share detailed health records is one of the Trump administration’s major health care policy goals. So far, though, patients aren’t really responding.
HHS may soon begin to understand why as it pursues plans to force insurers and providers to adopt new data standards that, in theory at least, should allow more people shift their health information to their smart phones and laptops.
The technology allowing patients to grab their own data — application programming interfaces, or APIs — is already used in e-commerce and to power businesses like ride share networks. But patient access to APIs is “pretty far from the mainstream” despite a decade of development efforts, said A. Jay Holmgren, a Harvard health policy researcher who has studied adoption rates. A recent JAMA study found only about 0.7 percent of patients who log into patient portals where they can access records wind up sending them to their smartphones.